What is what to do when dementia patient refuses care?

When a person with dementia refuses care, it's a challenging situation requiring patience, understanding, and a tailored approach. It's important to remember that the refusal is often a symptom of the dementia itself, rather than willful disobedience.

Here's a breakdown of strategies:

• Understanding the "Why": Try to identify the reason for the refusal. Is the person in <a href="https://www.wikiwhat.page/kavramlar/pain">pain</a>? Are they <a href="https://www.wikiwhat.page/kavramlar/confused">confused</a>, <a href="https://www.wikiwhat.page/kavramlar/scared">scared</a>, or simply not understanding what's being asked of them? Are they feeling <a href="https://www.wikiwhat.page/kavramlar/anxious">anxious</a> or <a href="https://www.wikiwhat.page/kavramlar/agitated">agitated</a>? Maybe they don't recognize you. Perhaps the room is too loud or bright. Addressing the underlying cause can sometimes resolve the refusal.

• Communication Strategies:

  • Simplify: Use simple, clear language and short sentences.
  • Patience: Allow plenty of time for the person to process information and respond. Avoid rushing.
  • Positive Approach: Frame requests positively rather than negatively. For example, "Let's get you comfortable" instead of "You need to change your clothes."
  • Non-Verbal Communication: Pay attention to your tone of voice, facial expressions, and body language. Stay calm and reassuring.
  • Distraction: Try briefly distracting the person with a favorite object, song, or activity before reintroducing the care task.
  • Validation: Acknowledge their feelings. For example, "I understand you don't want to take a bath, but it will help you feel better."

• Modify the Approach:

  • Timing: Try offering care at a different time of day when the person is typically more cooperative.
  • Environment: Ensure the environment is calm and quiet. Reduce distractions.
  • Task Modification: Break down the task into smaller, more manageable steps.
  • Person Modification: Consider if another <a href="https://www.wikiwhat.page/kavramlar/caregiver">caregiver</a> might have more success.

• Collaboration and Support:

  • Medical Professional: Consult with the person's doctor to rule out underlying medical conditions contributing to the refusal or for guidance on medication management.
  • Family Members: Talk to other family members or caregivers to share strategies and learn what has worked in the past.
  • Support Groups: Seek support from other caregivers who understand the challenges of dementia care.

• Ethical Considerations:

  • Respect Autonomy: Respect the person's autonomy as much as possible, while also ensuring their safety and well-being.
  • Least Restrictive Approach: Use the least restrictive approach necessary. Physical restraint should be a last resort and only used in emergencies to prevent immediate harm, and under the guidance of a medical professional.
  • Advance Directives: Refer to the person's advance directives (if any) for guidance on their wishes regarding medical care.
  • Legal Guardianship: If the person is unable to make their own decisions, a legal guardian may need to be appointed. Seek legal advice.

• Self-Care: Remember to prioritize your own well-being. Caregiving for someone with dementia is emotionally and physically demanding. Take breaks, seek support, and practice self-care to avoid burnout. <a href="https://www.wikiwhat.page/kavramlar/Caregiver%20burnout">Caregiver burnout</a> is a real risk.

• Documentation: Keep detailed records of refusals, the reasons for them (if known), and the strategies you tried. This information can be helpful for future care planning and communication with medical professionals.

Important Note: If the refusal of care poses an immediate threat to the person's health or safety, seek immediate medical assistance. If you are not sure what to do, call emergency services.